Tuesday, June 04, 2013

baring your soul

So it is very hard to bare your soul and then not have anyone respond.  I feel that way right now. UGH.

This is why...

HOWDI ALL,
Since I was diagnosed on my birthday 6 years ago it has been an uphill battle with MS, but I am winning so far!!!  I do hit speed bumps along the way but my "Home Team" Clark, Thomas, Brayden and Jake (the dog) help me keep going everyday. They are great at giving me kisses when I need them, encouraging words when I am down or just "don't wanna do it", without them I would be a self pitying lump on the ground.  My parents are my rocks they can tell when I don't feel good by just looking at me.  I am so glad they were able to get a ski condo in Utah.  It is nice to have backup even if they are 45 minutes away.  That is just my immediate home team, my "Away Team", or those that support me from "afar" also deserve some thanks.  Your positive thoughts, phone calls, notes and emails asking "so how's it going" are equally important to me!
That is why I am writing this quick note to all of you, as I would love it if you could help support me as I ride 40 miles on this MS Bike Ride on June 29-30 in Logan, Utah.  It is going to be “the newest challenge” for me.  It is going to be hard but I want to do it--I want to prove that I can!  
MS will not stop me, it will just make it harder to accomplish my goals and this is my current goal !!!
I am currently on one of the medications that they speak of below.  I am taking Rebif and this year I had tried something, not intentionally I might add.  I was not taking my dose as was prescribed.  I was doing two shots a week not three.  It was going fine for about 4 months.  So of course I started thinking maybe I don't need this medication I hate the shots anyway, they burn and I dread them when it is time.  Well then the weather got hotter 90 degrees to be exact, and I found that I did need the medication.  I am fine when it is snowing or a nice chilly 72 or colder, but then it gets warmer and I have noticed that my concentration just goes out the window.  Oh and did I mention I have a very short fuse as well.  I know I am screaming too much when the dog runs into his kennel and sits looking at me.  I have gotten back on the correct dose and I have much more patience, which makes Jake and the children very happy.
I'm making some momentum, and I'd love your help in making a difference, so if you could donate anything even just $5 it would get me closer to my goal of $600.  And if you want some lemonade to go with it come on by the house and Brayden will serve you a cup. :)  Thank you all very much again for all of your support!
If you want to join my team "Heidi's heroes" and ride with me, you are welcome to do that too.
Multiple sclerosis has been around for centuries, taking away people's ability to feel, see and even move. Since 1993 (almost 20 years), TEN new disease-modifying drugs have been made available and dozens more are in the pipeline - most recent therapy was just approved on March 27, 2013! Where there was once no hope, there is now huge momentum towards successful treatments and a cure.

By clicking on the link below, you can make a secure, tax-deductible donation in any amount for me and my team. You can also send a check in by postal mail to the address below--just put my name in the memo field of the check so it gets credited to my team. 
(you can also mail them to the house and I will get them turned in)

Any amount, great or small, helps to make a difference in the lives of people with MS. I appreciate your support and look forward to letting you know how I do!

Thank you,
 Heidi Taylor

P.S. If you would like more information about the National MS Society, how proceeds from Bike MS are used, or the other ways you can get involved in the movement to create a world free of MS, visit curemsutah.org.

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National Multiple Sclerosis Society
1440 Foothill Drive, Suite 200
Salt Lake City, UT 84108
Phone: 801-424-0113, select option 2
Email:
Contact us at: http://www.nationalmssociety.org/ or 1-800-344-4867. 
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